Fibromyalgia

Just when you think you’re okay

I’ve got so used to managing my pain that, on occasion, I would consider myself a bit of a pro. Flare ups haven’t happened in over four months and – although I was too scared to say it out loud – I was starting to think that maybe, just maybe, my symptoms were slowing down.

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And then, this week, two things happened. Two things that knocked me on the head and said, “Hey chick! You’re ill – don’t go thinking you’re okay now!”

Firstly, I went shopping. I know, the gall of me! I shopped for a whole 70 minutes before it would be fair to say that my legs just gave up. Clearly they felt I had experienced too much fun for one day. I limped, called a friend slightly distressed, and then hobbled in to a taxi home.

I welled up in the taxi. The inability to walk hadn’t happened to me in a while. I thought it was because I was getting better… it turns out it’s just because I haven’t been shopping for more than 60 minnutes in a long time.

The second bang on the head was tonight when, shock horror, I cooked. Firstly, chopping an onion is one of the most painful things in the world. I then stirred risotto for 20 minutes and had to get a chair to sit down as my back tingled, I got pins and needles in my arms and my legs started to shake. From cooking.

Fibro sufferers – to those of you who cook on a daily basis, I have all the respect in the world for you. How do you do it?

I guess this week the Fibro Gods have reminded me that, no matter how well you’re managing your symptoms, don’t forget that life isn’t what it was.

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19 comments on “Just when you think you’re okay

  1. Hello there! I’m so sorry to hear that you’re having a rough time. It’s so frustrating and sad when you think you’re doing well and then the fibro rears it’s ugly head!! 😦 I don’t cook all of the time but when I do, I like to use my crockpot/slow cooker and make “dump” meals. There are a ton of slow cooker meals on Pinterest and other websites. I simply open cans of veggies/beans/tomatoes/etc, rinse them and then dump them in the slow cooker with chicken/beef broth, some spices and whichever meat I choose. I don’t know if you eat meat but if you do, I’ve found it helpful to brown/cook several pounds of hamburger at a time and then store it in individual 1 pounds batches in the freezer until I need them. I do not stand and monitor the meat when I’m browning it. I put it all in a big pot, put the lid on, put it on med-low heat and let it cook. I check it every 10 min or so to chop it up and to make sure it’s not burning but otherwise I just ignore it. I hope you get back on your feet really soon. Hugs

  2. Sorry you had such a bad day but the ever changing temperature in the weather doesn’t help any of us Fibro sufferers. Hope you have a better day tomorrow and try to pace yourself.

  3. Jill Jensen

    So it’s not just me that gets blindsided by these reminders that despite your best efforts it takes almost no effort (weather alone) to feel the effects of fibro. It never ceases to amaze me how little it can take to cause so much havoc. I’m especially frustrated when I hear people, physicians in particular, say that mild forms of exercise are beneficial. How long do I have to endure the agony caused by these “mild” forms of exercise when walking just 5 minutes on a treadmill, 20 minutes of standing in a line, or heaven for bid I try to vacuum, and I suffer for days afterwards. I mean seriously, will it take a few days, 6 weeks or 6 months to condition my body? Frankly, I’ve only made it to 6 weeks of this type of mild exercise before I threw in the towel. Are there any fibro sufferers who can share a success story?

    • Hi Jill, I know right?! So frustrating. I’m just about to get back on my exercise journey by swimming. I hate it and it’s boring buy it was pretty good for me. I only use my legs though, I have to rest my arms on a float.

  4. Barbara Marincel

    Fibro sucks. It can be so cruel. I’m stuck in a nasty flare now too. Pamper yourself as much as you can…maybe a long hot bath, a favorite book, hot chocolate…and try to get as much extra rest as possible. xoxoxo

  5. You symptoms sound like multiple sclerosis which my daughter has… are the diseases similar?

  6. Marianna

    I am so sorry that you are experiencing a flare up. That’s brutal! For what it’s worth I have been very lucky to have my symptoms under control (which means I don’t hurt horrifically anymore and I have less flare ups) by taking medication every day. I have exercised on a regular basis all of my adult life and didn’t get hit with the fibro until my mid 50’s. I still swear it is, in my case anyways, caused by hormone changes. After multiple doctors/therapists/chiropractors on my way to diagnosis I have learned that a combination of yoga, stretching, light weights for about 45 minutes each day allows me to be able to get going. Every time I try to add something new to the routine though it takes weeks to get used to it. I also do Aqua Zumba two nights a week for 45 minutes to get in some aerobics. I can’t swim very well so laps were out plus they would have bored me silly. Machines and walking are out. Too much pounding that sets off mega pain. Water is a friend. Haven’t tried it yet but a friend gave me Epsom salts to use in a bath. That’s supposed to help lots. Just need to find the time.

    • I’m going to back in the water too. It really was a good way to exercise, I’m just cold and lazy in winter so couldn’t quite find the time!

      • Marianna

        Posted that on a “good” day then spent the next 3-4 days in various states of pain, exhaustion, fuzz. Aargh!

    • Jill Jensen

      I used to walk a half hour 5 days a week. Since diagnosis I’ve tried yoga, Tai Chi, and even water physical therapy. I used to love to swim but after I tore the meniscus in both knees my legs just don’t work like they used to. I guess I just need to give the water thing more time.

  7. I know those feelings well.

  8. Sorry you are having a tough time of it. I just said a similar thing last week actually “it’s like I’m ticking along fine, doing well and my body has to go ‘nope don’t think so, you’re still sick remember?'”. It can seem so cruel. For me it happens when I get too complacent (not saying this applies to everyone else though). I push the boundaries a bit too much and I break. It absolutely sucks. It never fails to get me upset when it happens after doing something “normal”. Typically when I look back I realise it has been building and I’ve found myself saying yes too often or getting carried away. But my “doing too much” is doing normal things so it’s still really shitty.

    • It’s complacency for me too Donna. It’s like I’ve lulled myself in to a false sense of security!

      • That’s exactly it. I get like “wow I still feel fine after doing that” so the next week I do something else, then something else. And it slowly creeps up on me, then I’m bust. I think it’s hope and optimism taking over when I need to stay more grounded to be honest. It’s hard to do sometimes though.

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