One thing that I would advise all fibromyalgia sufferers to do is to get to know your own body and your own limits. I’ve spent a lot of time over the last couple of years trying to work out what I can and can’t do, and about a year ago I realised that on a good day I can walk for about an hour. After an hour, the dreaded limp sets in and things deteriorate quite quickly. So with that in mind, I tend to plan a ‘day out’ knowing I’ve got one good hour in me and my only challenge is then to decide what to do with it.
I woke up this morning to sunshine! Sunshine, for crying out loud! It was too good to miss, so I planned a trip to Greenwich Market for lunch and shopping. Knowing I had about an hour to work with, I got the bus then the train to the market and spent about half an hour browsing the stalls.
Shortly after the market, I headed over to the National Maritime Museum. Museums are really tough on fibro – or at least they are for me. The slow wandering around is actually harder on my body than a march down the street, so I knew I didn’t have long.
After about an hour, my time had run out and the limp had set in so I found my bus stop and headed for home. I’m now on the sofa, under three blankets with a heat back on my back and legs, and I’m wondering how long it would take me to train the cats to make me a cup of tea as the kitchen seems just too far right now.
I’m a bit sad that on a beautiful day like today I couldn’t spend longer out and about, but then I remind myself that there will be lots of people who won’t have even made it out of bed today, so I guess I feel pretty lucky today. Oh, and to top it all off, I got to wear my new boots!
A friend recently sent me this piece of writing by someone with fibromyalgia, and I’m sure it not only rings true with me but with many other Fibro/CFS sufferers too.
As a Fibromyalgia sufferer I do not want your sympathy;
I just want you to understand who I am because I may forget.
Yesterday I may have been limping, today I may be skipping, and tomorrow I may be having a sofa day.
Yesterday I may have been on top of the world, today I may want to stay indoors; tomorrow I may not be able to get out of bed.
Although my pain is all over, yesterday my leg may have been hurting more than my arm, today it’s my head; tomorrow it may be my back.
Yesterday I was able to make a three course meal; today it’s a frozen meal, tomorrow its Jam and bread.
Yesterday I climbed a mountain, today I may manage a mile, and tomorrow I may manage a smile.
Yesterday I may have been engaging in great conversation, today I may forget my words, tomorrow I may have forgotten we spoke.
All I can say today is that I hope it is sunny where you are, and I hope that you are having a good day. x